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7-year-old girl dies after fight to legalize cannabidiol

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7-year-old girl dies after fight to legalize cannabidiol

By Lacey Crisp. CREATED May 13, 2014 - UPDATED: May 13, 2014

We first introduced you to Lydia Schaeffer's contagious smile in February.  

"Her laugh and her smile just lit you up," said Lydia's mom, Sally Schaeffer.  
 
"She was so inspiring and she made my day when I heard her laugh," said Devin Schaeffer, Lydia's older brother.
 
7 year-old Lydia fought her whole life.
 
"To me, she's a little angel," Devin Schaeffer said.
 
Now she's resting peacefully.
 
"A part of my soul is gone," said Tom Schaeffer, Lydia's father.
 
Lydia had a rare disease that caused her to have seizures nearly 80 percent of her sleeping hours.  The Schaeffer's heard about a treatment, an oil extract from marijuana called cannabidiol that could help eliminate the seizures.  Sally fought in Madison, and in April, Governor Walker signed the bill into law.
 
"I'm so proud of my wife for what she's done for our family and so other families in our shoes.  If we could just help one kid avoid this," Tom Schaeffer said.
 
Now, there's a push in Madison to rename the law after Lydia.
 
"That would be an excellent honor.  She left a huge legacy and a huge part in people's lives and we'd be honored if that occurred," Sally Schaeffer said.
 
The Schaeffers are planning on starting a foundation to help other kids like Lydia.
 
Click here to visit Lydia's family's website. A visitation for Lydia will be held Friday from 4:00 - 8:00 p.m. at Schuette Daniels Funeral Home in Burlington. Saturday mass will be held at St. Mary's Catholic Church in Burlington with burial at 11:00 a.m.
Lacey Crisp

Lacey Crisp

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Lacey came to TODAY'S TMJ4 after working in in Albuquerque, Memphis, Grand Forks, and Green Bay. She is a proud graduate of the University of Minnesota.