Update: Plan Set for Charlie's Second Stem Cell Transplant
MINNEAPOLIS, Wis.-"Charlie" is resting comfortably. Those are the first words written about the six year old from Darboy, Wisconsin in Trisha Knuth's Caring Bridge Journal.
After weeks of pain and discomfort, doctors at Children's Hospital in Minneapolis have started the medication Rituximab designed to help Charlie's stomach feel better.
Trisha Knuth writes Charlie is getting ready for his second stem cell transplant. "Charlie is being infused with ATG. An immunosuppressent that will wipe out the rest of his immune system. The next few weeks are going to be very intensive. Avoiding infection is going to be number one priority." His mother explained. "Charlie will be getting ATG for 3 more days and then Saturday, Charlie will be infused with the donor cells. The next few weeks are going to be very challenging while we wait for new donor cells to grow and multiply."
Once the procedure is complete, Charlie will be isolated again. "We are once again starting over." Trisha Knuth writes.
She also had a stern message: "I have gotten messages from people advising me to just support Charlie, sit back and love him, and support him if he wants to die. I don't want to ever see those again." Trisha writes. "Charlie wants to fight. He loves life. He has a good life, a good family, and a wonderful community of supporters. He is happy, and has had wonderful childhood experiences that many healthy kids only wish they had. He has every reason in this world to fight for life. His life is beautiful."