Community Supports Baby with Rare Genetic Disorder
Friends are Planning Benefit for Infant with SMAPhoto: Video by kmtv.com
Omaha, NE - Joseph Ingram is originally from Omaha and still has family in town. He now lives in Alabama. In November, he and his fiancee, Nikki, welcomed their daughter into the world. Cadence Jade seemed to be a healthy newborn.
They came to Omaha over Christmas to visit family. That's when Joseph's mom Cindy Kwiatkowski noticed Cadence wasn't moving much. Cindy is a registered nurse and told her son to take Cadence to the hospital.
While they were back in Alabama, doctors diagnosed Cadence with Type 1 Spinal Muscular Atrophy. It's the most severe form of SMA and babies typically do not live longer than two years. Their muscles become so weak that they're no longer able to perform necessary functions like breathing.
SMA is a genetic disorder. One in forty people carries the gene but probably doesn't know it. In almost every case of SMA, both the mother and father have the recessive gene. If both parents are carriers, there's a 25% chance their baby will have SMA.
Loved ones have organized a fundraiser to help Cadence's family with medical bills. They also hope to have enough money to donate some for SMA research.
The benefit will be at Shamrock's Pub and Grill in Omaha on February 10th. It runs from 2:30pm to 2am. Twenty-one artists are slated to take the stage. You can learn more about the benefit and Cadence's story at CadenceJade.com or by going to the "Prayers for Cadence" Facebook page.